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LI 17-Year-Old Dies After Battling Butterfly Disease 'With Bravery, Sense Of Humor'
Tributes are pouring in for a beloved Long Island teenager who died after a lifelong battle with a rare skin disease that left his body covered in open wounds.
Brian Ilg, of Patchogue, died Sunday, Jan. 8, at age 17, according to his obituary.
It marked the end of what relatives described as a “long and painful” journey that the teen “handled with strength, bravery, and a sense of humor.”
Ilg was born May 20, 2005 and was diagnosed with a severe form of epidermolysis bullosa, more commonly known as butterfly disease. The rare disorder leaves skin fragile - like butterfly wings - and susce…
