Tag:

Batten disease

Hudson Valley Girl Succumbs To Rare Disease At Age 15 Hudson Valley Girl Succumbs To Rare Disease At Age 15
Hudson Valley Girl Succumbs To Rare Disease At Age 15 A Hudson Valley girl whose battle with an extremely rare disease of the nervous system prompted an outpouring of support and attention from news outlets and social media has died. Brianna Christine Skriver of Newburgh succumbed to Batten disease on Friday, Jan. 12 at Maria Fareri Children’s Hospital. She was 15. Brianna loved dancing, playing soccer, and loved her Disney Princesses. The daughter of Tammy (MacMorran) Skriver, she was born March 5, 2002 in Kissimmee, Florida. In addition to her mother Tammy, she is survived by her brother, Austin Skriver, at home; her grandparents, David an…