Tag:

Rare Diseases

Community Rallies For Philly Area Boy With Childhood Alzheimer's Community Rallies For Philly Area Boy With Childhood Alzheimer's
Community Rallies For Philly Area Boy With Childhood Alzheimer's Support is surging for a 13-year-old Chester County boy who is fighting a rare, degenerative syndrome that has been compared to Alzheimer’s. Connor Dobbyn was recently diagnosed with Sanfilippo syndrome Type C, a fatal brain disorder caused by a single missing enzyme. "Because Connor lacks this single enzyme, toxic storage material is building up in his brain every second and damaging it," Marisa DiChiacchio, his mom, wrote on a GoFundMe. There is currently no FDA-approved treatment or cure. Connor will eventually lose the ability to walk, talk, and feed himself, DiChiacchio wro…
Where Is Jersey Mike's Newest NJ Shop? What Day Does It Open? What Time? Are You Going? Where Is Jersey Mike's Newest NJ Shop? What Day Does It Open? What Time? Are You Going?
Where Is Jersey Mike's Newest NJ Shop? What Day Does It Open? What Time? Are You Going? Bradford Fritts and Steve Korman opened their first Jersey Mike's Subs franchise in Ramsey a little over five years ago, followed by Ridgewood and Montvale. Now they're opening another. The shop will be open every day from 10 a.m. to 9 p.m. at 300 Godwin Avenue in Wyckoff, across from the Boulder Run and CVS shopping centers off Franklin Avenue.  North Jersey oldtimers can remember the original Jersey Mike's, a Shore magnet founded in Point Pleasant Beach in 1956. Now it's the nation's fastest-growing sandwich chain, with shops in Fort Lee, Wayne, Fair Lawn, Paramus, Rochelle Park, …