Tag:

ALS

ALS Diagnosis Rocks LI Teacher And Family, Community Steps Up In Fundraiser ALS Diagnosis Rocks LI Teacher And Family, Community Steps Up In Fundraiser
ALS Diagnosis Rocks LI Teacher And Family, Community Steps Up In Fundraiser After a Long Island teacher and his family had their lives upended by his ALS diagnosis, the community has rallied around them in an online fundraiser. Mike Saglembeni, 51, worked for 27 years as a teacher, most recently at Riverside Elementary School in the Rockville Centre Public School District, his friends wrote in a GoFundMe launched Tuesday, April 7. “His impact on his students and community is immeasurable, and he is cherished by all who know him,” organizers Lisa Goodenough and Caryn Guggeri wrote in the fundraiser. “Mike is an awesome and very loving husband to Dana for the past 22…
Trapped In Cement: Woman With Worsening ALS Feels Like Her Body’s Been Poured In Stone Trapped In Cement: Woman With Worsening ALS Feels Like Her Body’s Been Poured In Stone
Trapped In Cement: Woman With Worsening ALS Feels Like Her Body’s Been Poured In Stone Brooke Eby isn't ready to call "code red" just yet as she continues her battle with ALS as she approaches the "later stages" of the disease. The Potomac, MD native and Lehigh University graduate, who has been sharing her "dying diary" on social media, had some strong words in her latest update as she described the toll ALS continues to take on her body. In her latest post, Eby says she hates that she's paralyzed, and explained that it feels like someone poured cement over one foot, then the other, then her entire body. "It feels like the actual me is stuck inside the cement, desperately tr…
The Ice Bucket Challenge Is Going Viral Again: Here's Why It's Back The Ice Bucket Challenge Is Going Viral Again: Here's Why It's Back
The Ice Bucket Challenge Is Going Viral Again: Here's Why It's Back More than a decade after the "ice bucket challenge" raised millions for ALS, the viral phenomenon has been rebooted with a new mission. The social media challenge from the mid-2010s was revived by the Mental Illness Needs Discussion (MIND) club at the University of South Carolina. MIND posted its first Instagram video of the challenge on Monday, March 31. The ice bucket challenge is now a fundraising effort for the mental health support group Active Minds. The movement has generated more than $195,000 in donations as of Monday, April 21. The group's founder, South Carolina junior…