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Branchio-OtoRenal Syndrome

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NY 11-Year-Old Back On Dance Floor Thanks To Kidney Donation From Doctor Brother NY 11-Year-Old Back On Dance Floor Thanks To Kidney Donation From Doctor Brother
NY 11-Year-Old Back On Dance Floor Thanks To Kidney Donation From Doctor Brother Not everyone gets to meet their hero; For Emily Alanko, her hero happens to be her big brother. The Long Island 11-year-old from Commack, who loves dancing and all things Barbie, was born with a rare genetic disorder known as Branchio-OtoRenal (BOR) Syndrome, which causes malformations of the ears and kidneys. In Emily’s case, she was born with just one kidney, meaning a pair of doctors at Cohen Children’s Medical Center has had to monitor her condition since birth. Alarm bells began to ring earlier this year when her longtime care team, Cohen doctors Christine Sethna and Pamela Singer, we…

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by Michael Mashburn